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Communicate

Why communication is important?
Good communication means people have choice and control over the way their care is planned and delivered, based on ‘what matters’ to them and their individual needs and preferences.

Resources

Serious Illness Conversation Guide : Use this to talk to patients about their goals and values, set up the conversation, assess the patient’s illness understanding and information preferences, share prognosis, explore key topics and document the conversation

Serious Illness Conversation Guide

Guidance from the RCP around holding honest conversations about the future

Talking about Dying

Personalised Care and Support Planning

MyWishes

MyWishes is a free to use, ‘tech for good’ platform. It will empower you to write your Last Will & Testament, safeguard your Digital Legacy, plan your Funeral, curate a Bucket List, leave Goodbye Messages and make plans for your future health and social care within an Advance Care Plan.

MyWishes

Hold regular MST meetings to review needs and update plans:
Gold Standards Framework (GSF) supportive / palliative care register
Multidisciplinary Team (MDT)

A multidisciplinary team (MDT) in palliative care consists of various healthcare professionals who collaborate to address the comprehensive needs of patients with life-limiting illnesses. MDT may consist of, but not limited to, Doctors, Nurses, Allied Health Professionals, Social Worker, Psycologist, Spiritual Care, Family Support,

EARLY top tips

Record key decisions clearly in the electronic patient record using EPaCCS

Electronic Palliative Care Coordination System – mechanism for recording conversations/outcomes and care plans using coding in Electronic Patient Records (EPR). Coordinating care for vulnerable people in the last stages of life is challenging, especially when so many different agencies are involved. GPs, hospitals, hospices and the ambulance service in the North West are working on using an Electonic Palliative Care Coordination System (or EPaCCS) to improve end of life care. The constantly updated record means everyone has the latest information on a patient’s medical condition and medication as well as their wishes.

VIDEO DESCRIPTOR: This video reports on how GPs, hospitals, hospices and the ambulance service in the North West are using an Electonic Palliative Care Coordination System (or EPaCCS) to improve end of life care

End of Life Care – EPaCCS system – YouTube

VIDEO DESCRIPTOR: In this video Dr Sinead Clark, GP and Clinical Lead talks through the principles of EPaCCS and shares some case studies.

EPaCCS webinar – YouTube

Maintain up to date palliative care register using GSF principles

The National GSF Centre’s guidance for clinicians to support earlier identification of patients nearing the end of life, leading to improved proactive person-centred care.

Proactive Identification Guidance

Front runners in Primary Care

Education to support communication

Please find useful updates, information and resources below 

The End-of-life Care for All (e-ELCA) programme is an elearning library which provides resources to enhance the training and education of the health and social care workforce so that well-informed high-quality care can be delivered by confident and competent staff and volunteers to support people wherever they happen to be.

Please select the button above to access e-ELCA

Skills for Health and Skills for Care Core Skills Education and Training Framework for End of Life Care.

Core skills

A collection of handouts, reading materials, and other tools that complement the No Conversation Too Tough training programme.

Ruth Strauss Foundation